Authors: Richard McQuellon, Michael Cowan
ISBN-13: 9780195389227, ISBN-10: 0195389220
Format: Paperback
Publisher: Oxford University Press, USA
Date Published: April 2010
Edition: (Non-applicable)
Richard P. McQuellon, Ph.D. is Professor of Medicine, Comprehensive Cancer Center of Wake Forest University Baptist Medical Center.
Michael A. Cowan, Ph.D. is Assistant to the President, Loyola University New Orleans, and Executive Director of Common Good, a network of civic organizations working to rebuild and transform post-Hurricane Katrina New Orleans.
Every day, thousands of people receive a diagnosis of serious, life-threatening illness, and their families and friends suddenly become caregivers. Despite the best of intentions it is not always easy to communicate well under these circumstances, or find deep empathy for something one has never before experienced. When is it best to speak, and when to be silent? How can someone provide real comfort, and how can relationships with loved ones facing serious illness be enhanced in this most difficult time?
This book is about how to be an encouraging caregiver and friend under the most difficult circumstances, when the possibility of death is all too real The authors believe that open dialogue must not be avoided until the last minute when opportunities will be limited, but that caregivers and loved ones can embrace this time, mortal time, honestly as a way to sensitively and compassionately engage with those for whom a central fact of life is realizedthat all of our lives are time-limited.
In The Art of Conversation Through Serious Illness, the authors consider how to best listen to and speak with one facing life-threatening illness, with lessons on being a primary conversation partner, becoming properly empathic and receiving empathy, maintaining everyday conversation, using platitudes appropriately, understanding healthy denial, and talking about dying. Offering bedside guidance usually only available to professionals and peppered with insightful anecdotes from the authors' own experiences, this gentle, succinct book is appropriate for anyone going through this uniquely difficult yet universal life experience.
Reviewer:Darrell A Owens, DNP, ARNP(University of Washington School of Nursing)
Description:This is guide to communicating difficult information to people with life-threatening or life-limiting illnesses and their family members. The authors use examples of discussions with patients and families to demonstrate the different elements of these conversations.
Purpose:The purpose is to help caregivers best listen to and speak with someone facing a life-threatening illness. The authors state that the book is appropriate for anyone going through this "uniquely difficult, yet universal life experience." As the elder population continues to grow, so too does the number of people living with chronic, often life-limiting illness. For many of these people, advanced life-sustaining technology has low or no utility. The ability to discuss these and other issues that arise in life-threatening illness have created the need for this book. The authors' objectives, specifically to serve as a guide for anyone going through this situation, are only partially met. The book serves as an exceptional resource for professionals whose job requires communicating with people about their life-threatening illnesses. However, the content, while easy to read for a healthcare professional, may not be as easy to understand for patients or family members.
Audience:The authors intend this book for lay people, specifically patients and family members, as well as for health professionals who work with people experiencing life-threatening illness. Any health professional whose job requires communicating with people who are experiencing a life-threatening illness would benefit from reading this book. However, in my judgment, the book would be difficult to comprehend for someone who is not a clinician. The authors have extensive experience in the field.
Features:The book is divided into three parts. The first is a comprehensive overview of the many different meanings of issues that arise in life-threatening illness. The book is based on the concept of "mortal time," which is defined by the authors as the experience of human beings confronting the prospect of death. Part II explores the difficult conversations in terms of hope, empathy, and platitudes. Part III serves as a guide for those holding difficult conversations. The emphasis is on addressing suffering, resilience, and caring for the caregiver. Part I, which defines and explores mortal time, is the most useful section of the book, as new terms and concepts are explained. For experienced professionals, part III serves as a good review and reminder about holding difficult discussions and self care. The easy to read style, smaller pages, and succinct prose enable readers to read the book in a short period of time.
Assessment:This is a well-written guide for those who engage in difficult conversations with people experiencing life-threatening illness and their families. The concept of mortal time serves as a central theme that binds the entire book together. While there are numerous books related to difficult discussions in the setting of life-threatening illness, the succinct nature of this book makes it a more user-friendly guide.
Acknowledgments xi
Prologue xv
Introduction 3
The Birth of Possibility 3
Living with Mortality 5
Guidance for Caregivers in Mortal Time 8
Part I The Many Meanings of Mortal Time 13
Mortal Time: How Long Does It Last? 14
The Multiple Meanings of Mortal Time 16
Shattered Assumptions 8
Creating Meaning 19
Coping Style 20
What to Expect in Mortal Time 24
The Challenge and the Invitation of Mortal Time 33
A Question of Balance 34
The Prospect of Despair 35
Finding Meaning 37
Living in Mortal Time 41
Sources of Hope 44
Nevertheless, There Is Meaning 45
Part II Hope from Conversation 49
Hope for the Day 49
Avoiding Gloom 52
False Hope 53
Conversation 54
Healing Conversation: Basic Elements 56
Talking In and About Mortal Time 59
Conversation Partners 62
Empathy 64
Becoming Properly Empathetic 66
Receiving Empathy 65
Honesty: What Can I Say? 70
The Right Words 72
Acknowledging Fear 73
Everyday Conversation with Friends 75
Platitudes: Let's Hope for the Best and Prepare for the Worst 77
You First! 80
The Humane Use of Words: Effective Phrases in Mortal Time 81
Consideration and Disciplined Spontaneity 82
Censored Conversation vs. Active Listening 85
How Much Time Do I Have? 87
Appreciating Everyday Chatter 88
Denial? 89
Healthy Conversation About Dying 92
Practical Conversation 94
Part III Guidance for Caregivers 99
Being a Companion in Mortal Time 99
Kind Companions 100
The Costs and Risks of Companionship 104
The Nine Personal Virtues Most Needed in Mortal Time 106
A Word to Caregivers 117
Resilience and Absorbing Suffering 118
Empathy Shift 120
Sharing the Darkness 122
Mending 123
The Art of Conversation Through Serious Illness 123
Notes 125
Bibliography 131
Index 135
Author Contact Information 144