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Share the Care: How to Organize a Group to Care for Someone Who Is Seriously Ill » (Revised)

Book cover image of Share the Care: How to Organize a Group to Care for Someone Who Is Seriously Ill by Cappy Capossela

Authors: Cappy Capossela, Sheila Warnock, Sukie Miller
ISBN-13: 9780743262682, ISBN-10: 0743262689
Format: Paperback
Publisher: Simon & Schuster Adult Publishing Group
Date Published: October 2004
Edition: Revised

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Author Biography: Cappy Capossela

Share The Care was born when twelve people — including Sheila Warnock and the late Cappy Capossela — came together to help their terminally ill friend and stayed together caring for her for three and a half years. The authors documented the systems developed during that period for others to follow. Tragically, in 2002, Sheila spearheaded a group for Cappy when she was diagnosed with a brain tumor. Following Cappy's death, Sheila created a website and a nonprofit organization in Cappy's memory dedicated to bringing the Share The Care model to caregivers everywhere.

Share The Care was born when twelve people — including Sheila Warnock and the late Cappy Capossela — came together to help their terminally ill friend and stayed together caring for her for three and a half years. The authors documented the systems developed during that period for others to follow. Tragically, in 2002, Sheila spearheaded a group for Cappy when she was diagnosed with a brain tumor. Following Cappy's death, Sheila created a website and a nonprofit organization in Cappy's memory dedicated to bringing the Share The Care model to caregivers everywhere.

Book Synopsis

You Don't Have to Do It Alone

Whether you're prepared for it or not, chances are you'll take on the role of caregiver when a family member or friend is affected by a serious illness or injury, or when you find your elderly parent needs help. As you'll soon discover, the range of tasks and responsibilities involved are overwhelming. Share The Care offers a sensible and loving solution: a unique group approach that can turn a circle of ordinary people into a powerful caregiving team. Share The Care shows you how to:

  • Create a caregiver "family" from friends, real family members, neighbors, coworkers, and acquaintances.
  • Hold a meeting to organize your group, and introduce members to the Share The Care systems that guarantee every job will be done and no one person will have to do too much.
  • Discover the hidden talents within the group, make the most of their resources, cope with group issues, and stay together in the face of adversity.

Included here are valuable guidelines, compassionate suggestions, and a simple-to-use workbook section that together offer support to free the patient from worry and the caregivers from burnout. Share The Care offers friends and family the best answer ever to the frequently asked question "What can I do?"

Library Journal

Taking on responsibility for short or long-term care for the seriously ill can be overwhelming and confusing. Detailing their personal experience with a dying friend, the authors demonstrate how the aphorism "many hands make light work" holds true. By developing "caring networks," the work is spread among friends, neighbors, and family members, alleviating stress on the primary caregiver and providing peace of mind to the patient. Part case study, part how-to, this book includes sample forms and checklists, allowing readers to use it as a springboard to create their own group and providing practical advice and reassurance. Recommended for popular medical collections.-Anne C. Tomlin, Auburn Memorial Hosp. Lib., N.Y.

Table of Contents

Foreword11
Ch. 1How This Book Came to Be Written14
Ch. 2Do You Need a Caregiver Group?24
Ch. 3How to Take the First Steps in Forming a Share The Care Group33
Ch. 4How to Use This Book42
Ch. 5A Message from the Authors: How to Use This Section48
Ch. 6Planning the Meeting: Getting Started55
Ch. 7The Meeting: Part One: Getting to Know Each Other74
Ch. 8The Meeting: Part Two: Getting Organized83
Ch. 9the Workbook: All the Materials You Need to Make Your Group Run111
Ch. 10What the Group Means136
Ch. 11The Most Common Caregiver Group Pitfalls and How to Avoid Them142
Ch. 12The Jobs: An Overview148
Ch. 13Going with Your Friend to the Doctor151
Ch. 14Ten Steps to Making a Hospital Stay as Painless as Possible155
Ch. 15Finding Your Way Through the Medical Maze164
Ch. 16Making the Home Safe and Comfortable180
Ch. 17When Groups Help Out at Home188
Ch. 18Getting Their Affairs in Order195
Ch. 19Being with Someone Who Is Seriously Ill210
Ch. 20What-Ifs, Do's, and Don'ts217
Ch. 21The Second Meeting: Ten Signals That It's Time to Have One232
Ch. 22The Second Meeting: The Agenda236
Ch. 23Confronting Yourself239
Ch. 24Changes246
Ch. 25The Closing Meeting: Why You Need to Have One249
Ch. 26The Closing Meeting: The Agenda251
Ch. 27Personal Meaning254
Ch. 28The Healing Journey260
List of Resources269
Index275

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