Hospice Care for Children » (New Edition)

Armstrong-Dailey, Ann; Zarbock, Sarah

Written for those involved in the care of dying children, this book describes different models of care, the developmental stages of children's understandings of death, the crucial aspects of pain and symptom control, and psychological distress. The book outlines Children's Hospice International's Program for All-Inclusive Care for Children and their Families. Particular attention is given to the necessary emotional support for staff, grieving parents, and surviving siblings.

Annotation c. Book News, Inc., Portland, OR (booknews.com)

Ram Yogev

This book covers the concept of hospice care for children. "It is intended to serve as a useful tool for the reader who is taking care of a dying child. "The audience includes general pediatricians, family practitioners, any pediatric subspecialists dealing with dying children (i.e., oncology, pediatric AIDS, cystic fibrosis), nurses, social workers, and lay persons dealing with death (parents, teachers, clergy). "The lack of an algorithm for a model of care is a deficiency. The tables are too crowded and the type is too small. The few figures are worthless. However, the overall appearance of the book is good, and the appendixes are very helpful. "This is a timely book that covers an important topic well. The increased number of HIV-infected children living longer will make this book useful to any pediatricians and subspecialists who have not previously taken care of children in need of hospice care. The detailed index makes the use of this book easier. The book should be in all medical libraries and in the offices of pediatricians or family practitioners who are taking care of children with chronic diseases who need hospice care.

Foreword Desmond Mpilo Tutu Tutu, Desmond Mpilo

Introduction 3

I Issues in Clinical Management

1 Children's Understanding of Death Kathleen W. Faulkner Faulkner, Kathleen W. 9

2 Pain and Symptom Management Susan M. Huff Huff, Susan M. Nancy Hutton Hutton, Nancy 24

3 Psychosocial Aspects of Serious Illness in Childhood and Adolescence: Responding to the Storm Martha Blecher Gibbons Gibbons, Martha Blecher 54

4 The Spectrum of Palliative Nursing Care of Children and Their Families across Settings Veronica D. Feeg Feeg, Veronica D. Melissa Dodd Inglese Inglese, Melissa Dodd 76

5 Neonatal Death Cheryl Marco Naulty Naulty, Cheryl Marco 131

6 Care for the Child with HIV Infection and AIDS Lori Wiener Wiener, Lori Cynthia Fair Fair, Cynthia Maryland Pao Pao, Maryland Philip Pizzo Pizzo, Philip 150

II Support Systems

7 Caring for Bereaved Parents J. William Worden Worden, J. William James R. Monahan Monahan, James R. 181

8 After a Child Dies: Helping the Siblings Betty Davies Davies, Betty 201

9 Spiritual Care of Children and Parents Paul Thayer Thayer, Paul Robert Nee Nee, Robert 219

10 Staff Support in Pediatric Hospice Care Lizabeth H. Sumner Sumner, Lizabeth H. 240

11 Volunteers in Pediatric Palliative Care Programs: Changing Medical Environment Paul R. Brenner Brenner, Paul R. 266

12 The Essential Role of School Bereavement Programs John D. Golenski Golenski, John D. 280

13 Therapeutic Play and Creative Arts: Helping Children Cope with Illness, Death, and Grief Christina D. Brown Brown, Christina D. 305

14 The Primary Care Physician's Role in Hospice Care Ron S. Levin Levin, Ron S. 339

III Different Contexts, Different Lessons

15Children's Hospice and Palliative Care Worldwide Joan Marston Marston, Joan Rosa Maria Germ Germ, Rosa Maria Danilo J. Granera Lopez Lopez, Danilo J. Granera Patricia Lowe Lowe, Patricia Rosalie Shaw Shaw, Rosalie 365

16 Pediatrics and Palliative Care: Learning from One Another Ira Byock Byock, Ira 378

17 Children's Hospice International Program for All-Inclusive Care for Children and Their Families (CHI PACC) Patricia A. Lowe Lowe, Patricia A. Charlotte M. Curtis Curtis, Charlotte M. Brian Greffe Greffe, Brian Caprice Knapp Knapp, Caprice Elizabeth Shenkman Shenkman, Elizabeth Phyllis J. Slayer Slayer, Phyllis J. 398

18 Palliative Care across a Pediatric Post-Acute Health-Care System Eileen Chlsari Chlsari, Eileen Edwin Simpser Simpser, Edwin Burton Grebin Grebin, Burton 439

19 Ethical Decision Making at the End of Life Cynda Hylton Rushton Rushton, Cynda Hylton 457

20 Incorporating Children in an Adult Hospice Program Stacy F. Orloff Orloff, Stacy F. 490

21 Death-Related Literature for Children and Adolescents: Selected and Annotated, with Guidelines and Resources for Adults Charles A. Carr Carr, Charles A. 518

Appendix 540

Index 549