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Fetal Alcohol Syndrome: A Guide for Families and Communities » (1st Edition)

Book cover image of Fetal Alcohol Syndrome: A Guide for Families and Communities by Ann Streissguth

Authors: Ann Streissguth, Godfrey P. Oakley (Foreword by), Kenneth R. Warren
ISBN-13: 9781557662835, ISBN-10: 1557662835
Format: Paperback
Publisher: Brookes, Paul H. Publishing Company
Date Published: January 1997
Edition: 1st Edition

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Author Biography: Ann Streissguth

Streissguth, Ann, PhD (Univ of Washington)

Book Synopsis

In 1973, psychologist Ann Streissguth was shocked by the lack of scientific documentation on the impact of alcohol on the unborn child. She sought to fill that void by dedicating her professional career to the study of fetal alcohol syndrome (FAS) and fetal alcohol effects (FAE). In this compassionate volume, Dr. Streissguth draws on her life's work, writing with wisdom and authority on essential issues surrounding these alcohol-related problems. Using compelling case studies, photos, illustrations, and validated empirical research, the author highlights the cultural, racial, and economic diversity of FAS. A completely preventable disability, FAS still changes the life course of thousands of babies each year. This book will help physicians, psychologists, social workers, educators, advocates, and families of children and adults with FAS work toward an educated community, a supportive network of legislation and programs, and better futures for people living and growing with FAS.

Luther K. Robinson

This is a concise guide to better understanding the issues surrounding recognition and management of fetal alcohol syndrome (FAS). Although targeted toward families affected by FAS, it is equally valuable reading for those who provide care in the professional setting. The book was written to be a "vehicle for parents and professionals to use in working together to help children with FAS/FAE." In addition, this work is a valuable reference for active investigators who have limited time or access to the large, diverse body of knowledge concerning FAS. By placing information from multiple disciplines into a single, readable source, the author has given us a work that truly enhances our appreciation of the need for and effectiveness of the transdisciplinary model. The author's foreword indicates that her audience is "parents and professionals to use in working together." This book effectively reaches its target audience, providing current information and thought provoking insights for physicians, nurses, teachers, therapists, and advocates -- anyone who is actively involved in the care of persons with FAS/FAE. A coauthor on the seminal paper on FAS, the author is an internationally recognized investigator who has studied FAS for the past 25 years. Although much of her research has focussed on FAS among Native Americans, the information contained in this book is applicable to various populations. The book is visually appealing and contains a good balance between data derived from the basic and applied sciences. Each chapter begins with an anecdote concerning an experience of an individual living with the impact of FAS. These serve as the focal point around which the chapter'sresearch and diagnostic and management issues are addressed. Each chapter is well annotated with citations that range from antiquity (e.g., the Scriptures) to the present, and even includes untranslated references, giving the interested reader a large body of information for further perusal. This is an excellent work. The author has compiled a concise, comprehensive treatment of FAS ranging from its history to diagnosis and management. The book is empathically yet quantitatively written and exposes the reader not only to "common sense" issues surrounding FAS, but also to data that provide the basis for one's approach to care. It provides content with context. In my own work with families and other professionals involved with FAS, I found this book to be extremely useful for its breadth and depth of coverage of the topic. This book is a must for the libraries of individuals who care for persons with birth or developmental disabilities. It should be among the reference materials of physicians, social workers, educators, community advocates, and support groups. Equally important, it should find its way into the libraries of institutions that train the next generation of professionals.

Table of Contents

List of Tables and Figures
List of Photographs
About the Author
Foreword
Foreword
Preface
Acknowledgments
1Overview of Fetal Alcohol Syndrome3
2Diagnosing Fetal Alcohol Syndrome17
3From Awareness to Public Policy35
4Alcohol as a Teratogen55
5Alcohol's Impact on Children71
6Primary and Secondary Disabilities95
7Living with Fetal Alcohol Syndrome119
8The Advocacy Model145
9Families Speak Out165
10Preparing Children with FAS/FAE for Adulthood185
11Guidelines for Schools207
12Guidelines for Human Services227
13Education, Training, and Public Policy249
14Effective Prevention Programs for High-Risk Mothers263
Epilogue279
Resource Appendix281
Permissions291
Index293

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