Authors: Susan Beerman, Judith Rappaport-Musson
ISBN-13: 9781591026167, ISBN-10: 1591026164
Format: Paperback
Publisher: Prometheus Books
Date Published: May 2008
Edition: REV
Susan Beerman, MS, MSW (Kew Garden Hills, NY), is president and founder of Barrister Advisory Services, Inc., a consulting firm specializing in geriatrics and individuals with special needs.
Judith Rappaport-Musson, CSA (Jupiter, FL), is a partner and cofounder of Preferred Client Services, Inc., a geriatric care management and personal services firm. Her successful weekly Sunday column, "Eldercare 911," appears in four Scripps Treasure Coast newspapers.
Directed especially towards women, who often shoulder the burden of caring for elderly parents, this book delivers practical information on all aspects of elder caregiving and shares the insights of real people coping with caring for elderly parents. Readers can access the information by looking for quick answers to specific questions, or they can read more of the book to find prevention strategies and get an overview of caregiving issues. There is advice on knowing when parents need help, long-distance caregiving, medical and financial issues, and choosing a living situation. Beerman is president of an eldercare management consulting service; Rappaport-Musson is a Certified Senior Advisor. Annotation c. Book News, Inc.,Portland, OR
Beerman and Rappaport-Musson, eldercare specialists, offer a comprehensive guide to caregiving issues, calmly presenting information readers may not have even considered. For example, the first chapter addresses how to deal directly with one's parents, what to do if the parents don't want help and how to determine if parents, in fact, need help. The authors include sample dialogues, which will be particularly helpful with parents who refuse to acknowledge they need help. The section on long-distance caregiving is also quite useful-the authors advise readers to call ahead of time to schedule appointments with everyone connected to family care, from physicians to caregivers to support agencies. They also advise having a portable folder with key contact numbers so people will have essential information at their fingertips. This excellent, comprehensive guidebook offers information on nursing homes, hospice care and home heath professionals. (Sept.) Copyright 2002 Cahners Business Information.
Preface | 19 | |||
A. | You Are Not Alone | 19 | ||
B. | How to Use This Book | 22 | ||
C. | Write Us | 23 | ||
1. | The Pros and Cons of Being a Caregiver | 25 | ||
A. | Do You Want This Job? | 25 | ||
B. | Making the Eldercare Decision | 26 | ||
C. | If Eldercare Is Not for You | 27 | ||
D. | If You Decide to Care for Your Parent | 28 | ||
E. | Handling That First Crisis | 30 | ||
F. | The Effects on Your Family, Time, and Health | 31 | ||
G. | What If You Fail? | 33 | ||
2. | Knowing When Your Parents Need Help | 36 | ||
A. | What's Normal? | 36 | ||
B. | Loss of Loved Ones, Friends, and Advisors | 38 | ||
Loss of Self | 39 | |||
Loss of Independence and Control | 40 | |||
C. | Decline Is a Fact of Life | 43 | ||
D. | Why Parents Refuse Help | 44 | ||
Difficult Parents | 47 | |||
E. | What Are the Warning Signs? | 49 | ||
Memory Loss/Dementia | 49 | |||
Diminished Hearing | 50 | |||
Diminished Sight | 52 | |||
Falls | 53 | |||
Incontinence | 54 | |||
Self-Neglect | 55 | |||
Drug or Alcohol Abuse | 56 | |||
3. | Intervention: When? What? How? | 58 | ||
A. | Trusting Your Instincts | 59 | ||
B. | Planning Ahead | 60 | ||
C. | When Not to Intervene | 63 | ||
D. | Getting a Professional Assessment | 65 | ||
Private Assessments | 66 | |||
Public Assessments | 68 | |||
E. | Talking to Your Parents | 70 | ||
F. | Talking to Your Family | 72 | ||
G. | Choosing the Right Intervention | 74 | ||
Preventive Intervention | 76 | |||
Partial Intervention | 78 | |||
Total Intervention | 80 | |||
Crisis Intervention | 81 | |||
Legal/Financial Intervention | 82 | |||
H. | Taking the Car Away | 82 | ||
Providing Substitute Transportation | 84 | |||
4. | Caregiving Realities | 87 | ||
A. | Do You Have Realistic Expectations? | 87 | ||
B. | Understanding Your Responsibilities | 90 | ||
C. | Learning to Be an Advocate | 91 | ||
D. | Hands-on Care | 94 | ||
E. | Supervising Others | 96 | ||
F. | Financial Management | 99 | ||
G. | Recruiting Friends and Family | 102 | ||
H. | Using the Skills You Already Have | 102 | ||
I. | Where to Get the Training You Need | 103 | ||
5. | Long-Distance Caregiving | 108 | ||
A. | Why You Need a Long-Distance Support System | 108 | ||
B. | Creating Your Long-Distance Support Network | 112 | ||
Geriatric Care Managers | 116 | |||
Elder Law Attorneys | 117 | |||
Other Attorneys | 118 | |||
Physicians | 118 | |||
Friends and Neighbors | 118 | |||
C. | Preparing for Your Visit | 119 | ||
During Your Visit | 122 | |||
After Your Visit | 123 | |||
6. | Finding and Using Help and Services | 129 | ||
A. | What's the Right Support System for You? | 129 | ||
B. | Identifying Your Needs | 131 | ||
Adult Day-Care Programs | 135 | |||
Social-Model Day-Care Programs | 137 | |||
Medical-Model Day-Care Programs | 138 | |||
Medical Support | 140 | |||
Family Support | 142 | |||
Community Support | 143 | |||
Parent Support | 144 | |||
Significant Other Support | 146 | |||
C. | Respite | 148 | ||
7. | Handling Burnout | 155 | ||
A. | How Do You Know If You're Burned Out? | 155 | ||
B. | Getting Help | 157 | ||
C. | Reaping the Benefits of Respite | 161 | ||
D. | Managing Your Time | 164 | ||
E. | Restoring Your Quality of Life | 166 | ||
F. | Taking Care of Yourself | 169 | ||
G. | Setting Limits | 171 | ||
8. | Managing Medical Issues | 175 | ||
A. | Learning to Be an Advocate in the Doctor's Office | 175 | ||
B. | Choosing a Doctor | 177 | ||
Board-Certified Physicians | 177 | |||
Geriatricians | 178 | |||
Specialists | 178 | |||
C. | Preparing for the Visit | 179 | ||
Gathering Medical and Insurance Information | 180 | |||
Bringing Medications and Prescriptions | 181 | |||
D. | Asking the Right Questions and Getting the Answers | 183 | ||
E. | After the Visit | 185 | ||
Complying with Physicians' Orders | 185 | |||
Getting a Second Opinion | 188 | |||
Returning for New Treatment Options | 189 | |||
F. | Understanding Patients' Rights and Responsibilities | 191 | ||
9. | Overseeing Medications | 197 | ||
A. | Administering Medications | 197 | ||
Keeping Track of Medications | 199 | |||
B. | Developing a Relationship with the Pharmacist | 200 | ||
C. | Pain Management | 202 | ||
D. | Misuse of Medications | 204 | ||
E. | Abuse and Dependency | 206 | ||
F. | Over-the-Counter and Alternative Medications | 209 | ||
10. | Managing Benefits and Insurance | 213 | ||
A. | Why It's Worth the Effort | 213 | ||
B. | What to Do When a Claim Is Denied | 217 | ||
C. | Medicare | 218 | ||
How It Works: Parts A, B, and C | 219 | |||
Health Maintenance Organization (HMO) | 222 | |||
Point of Service (POS) | 223 | |||
Preferred Provider Organization (PPO) | 223 | |||
Medigap (Private Insurance) | 223 | |||
D. | Medicaid | 224 | ||
How It Works | 224 | |||
Applying for Benefits | 225 | |||
E. | Social Security | 226013 | How It Works | 227 |
Special Situations | 228 | |||
Survivor Benefits | 228 | |||
F. | Veteran's Administration | 229 | ||
How It Works | 229 | |||
Who Is Eligible | 230 | |||
11. | Dealing With Serious Illness | 233 | ||
A. | Insisting on an Accurate Diagnosis | 233 | ||
B. | Managing Major Illness | 237 | ||
The Importance of a Second Opinion | 239 | |||
Researching Treatment Options | 240 | |||
C. | Coping with Specific Conditions | 242 | ||
D. | Depression and Anxiety | 243 | ||
E. | Dementia | 246 | ||
F. | Agitated, Hostile, and Aggressive Behavior | 249 | ||
G. | Acquired Immune Deficiency Syndrome, or AIDS, in the Elderly | 252 | ||
12. | Coping with Alzheimer's Disease | 259 | ||
A. | Facts about the Disease | 259 | ||
B. | Testing and Diagnosis | 261 | ||
C. | Treatment Options | 262 | ||
D. | The Effects on Your Family | 263 | ||
E. | What to Expect as the Disease Progresses | 263 | ||
F. | Organizing to Handle Mild Memory Impairment | 265 | ||
G. | Primary Communication Tips and Coping Skills | 266 | ||
H. | Remember Your Body, Mind, and Spirit | 277 | ||
I. | Planning for the Future | 277 | ||
13. | When Hospitalization is Necessary | 282 | ||
A. | Facing Your Fears | 282 | ||
B. | Choosing the Right Hospital | 284 | ||
C. | Being Prepared | 289 | ||
D. | Emergency Admissions | 291 | ||
E. | Preplanned Admissions | 294 | ||
F. | What to Bring with Your Parent, What to Leave at Home | 296 | ||
G. | During Your Parent's Hospitalization | 297 | ||
H. | Planning for Discharge | 300 | ||
I. | Leaving the Hospital | 302 | ||
14. | Detecting and Dealing with Elder Abuse | 306 | ||
A. | The Realities of Elder Abuse | 306 | ||
Finding Help in Your Community | 309 | |||
Protective Services for Adults | 311 | |||
Guardians | 312 | |||
B. | Physical Abuse | 314 | ||
C. | Familial Abuse | 316 | ||
D. | Financial Abuse | 318 | ||
E. | Homecare Abuse | 319 | ||
F. | Social Abuse of Drugs and Alcohol | 321 | ||
G. | Rebuilding Trust | 323 | ||
H. | Ageism | 325 | ||
15. | How to Hire a Homecare Worker | 328 | ||
A. | What Are Your Options | 328 | ||
Family Caregivers | 330 | |||
Paid Homecare Workers | 331 | |||
Geriatric Care Managers | 333 | |||
B. | Evaluating Your Parent's Needs | 333 | ||
Duties and Skill Levels | 334 | |||
Expectations: Reality Check | 335 | |||
C. | Interviewing the Homecare Worker | 339 | ||
Legal and Professional Certifications | 339 | |||
Training and Experience | 341 | |||
D. | Supervising Homecare Workers | 343 | ||
Your Responsibilities | 344 | |||
E. | Your Right to Complain and Replace the Worker | 347 | ||
16. | Making Decisions About Housing: When? What? How? | 352 | ||
A. | Evaluating the Need for Change | 352 | ||
Safety and Quality-of-Life Issues | 354 | |||
Guilt Issues | 356 | |||
B. | Adapting Your Parent's Home for Safety and Security | 357 | ||
Assistive Devices and Helpful Equipment | 362 | |||
C. | Moving Your Parent into Your Home | 364 | ||
Space and Territory | 366 | |||
Adapting Your Home | 368 | |||
D. | Adult Homes | 369 | ||
E. | Assisted Living Facilities | 371 | ||
F. | Nursing Homes | 373 | ||
G. | Moving Your Parent | 373 | ||
Who Does What? | 375 | |||
Paring Down Your Parent's Belongings | 376 | |||
H. | Advocating after the Move | 377 | ||
I. | Visiting Your Parent | 378 | ||
17. | Evaluating the Move to a Nursing Home | 382 | ||
A. | Making a Difficult Decision | 382 | ||
B. | Choosing the Right Nursing Home | 385 | ||
C. | Location | 387 | ||
D. | Religious Preferences | 389 | ||
E. | Dietary Requirements | 389 | ||
F. | Specialized Care | 392 | ||
G. | Cleanliness | 393 | ||
H. | Activities for Residents | 394 | ||
I. | Who's Who in the Complaint Process | 395 | ||
J. | Medication/Pain Management | 396 | ||
K. | Patient Advocate and the Bill of Rights | 398 | ||
L. | Moving to a Nursing Home | 399 | ||
Making the Room Comfortable | 402 | |||
Clothing | 403 | |||
Valuables and Personal Items | 408 | |||
18. | Dating, Sex, and Remarriage | 411 | ||
A. | Your Parent's New Relationship | 411 | ||
B. | Remarriage | 414 | ||
Financial/Legal Issues | 417 | |||
C. | Dating, Love, and Intimacy | 422 | ||
Sexuality and Sex | 423 | |||
Safe Sex | 426 | |||
19. | Death and Dying | 429 | ||
A. | Facing Your Feelings and Fears | 429 | ||
B. | What Are Your Parent's Feelings and Fears? | 435 | ||
C. | Honoring Your Parent's Wishes | 439 | ||
D. | Funeral Arrangements | 441 | ||
E. | Grief and Mourning | 446 | ||
Saying Good-bye | 449 | |||
F. | A New Beginning | 450 | ||
20. | Caregiver Organizations and Resources | 455 | ||
Notes | 467 | |||
Glossary | 471 | |||
Index | 481 |