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Cystic Fibrosis: A Guide for Patient and Family » (Third Edition)

Book cover image of Cystic Fibrosis: A Guide for Patient and Family by David M. Orenstein

Authors: David M. Orenstein
ISBN-13: 9780781741521, ISBN-10: 0781741521
Format: Paperback
Publisher: Lippincott Williams & Wilkins
Date Published: November 2003
Edition: Third Edition

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Author Biography: David M. Orenstein

Orenstein, David M., MD (Univ of Pittsburgh)

The contributors represent the specialties of pediatrics, general medicine, and pediatric pulmonology. Most are from Children's Hospital of Pittsburgh and Univ of Pittsburgh.

Book Synopsis

Written by Dr. David Orenstein, director of one of the nation’s leading CF centers, this one-of-a-kind guide offers clear explanations and real-world advice on cystic fibrosis and its management. Patients, families, and health care professionals will find practical and reassuring information on day-to-day concerns—school, travel, exercise, nutrition, medication—as well as on physiological effects, treatments, complications, long-term issues, and prospects for a cure. The Third Edition is updated and revised throughout.

Wayne M. Samuelson

This is the second edition of a book aimed at people affected by cystic fibrosis, including patients, family, friends, and health professionals. The purpose is to inform those affected by the disease of the latest developments and help them pursue a normal life. The book fills an important gap for patients and families in providing answers to key questions. Although the book is primarily directed toward patients and their families and friends, medical students and trainees in both pediatrics and adult medicine will find it very useful. Established practitioners who are entering the field of cystic fibrosis as caregivers will also find this to be a very valuable introduction. The book is supplemented by illustrations that are clear and easy to understand. They are appropriate to the subject matter and text. A brief bibliography of classic references is provided. The table of contents is complete and easy to follow. There is an extensive index that is very useful. Each chapter begins with a highlighted summary of information called ""The Basics."" These are the high points of each chapter, and represent the essential information in each section. This carefully constructed book incorporates the expertise of some of the leaders in the field of cystic fibrosis into an easy to read book that clearly and frankly discusses the major issues of living with cystic fibrosis. The book is aimed at patients and their families. However, trainees in internal medicine, family practice, and pediatrics will find this book very useful. It would be a good acquisition for the medical library of any center that deals with cystic fibrosis patients.

Table of Contents

Contributing Authors
Introduction
Preface
Acknowledgments
1The Basic Defect1
2Making the Diagnosis13
3The Respiratory System19
4The Gastrointestinal Tract77
5Other Systems97
6Nutrition107
7Hospitalization and Other Special Treatments131
8Transplantation149
9Daily Life189
10Exercise197
11Genetics213
12The Family227
13The Teenage Years235
14Cystic Fibrosis and Adulthood253
15Death and Cystic Fibrosis273
16Research and Future Treatments281
17The Cystic Fibrosis Foundation293
App. A: Glossary of Terms303
App. B: Medications309
Glossary of Drugs334
App. CAirway Clearance Techniques347
App. DSome High Calorie Recipes363
App. EThe History of Cystic Fibrosis373
App. F: Bibliography375
App. GCystic Fibrosis Care Centers in the United States377
App. HCystic Fibrosis Care Centers Worldwide419
Subject Index449

Subjects