Authors: David M. Orenstein
ISBN-13: 9780781741521, ISBN-10: 0781741521
Format: Paperback
Publisher: Lippincott Williams & Wilkins
Date Published: November 2003
Edition: Third Edition
Orenstein, David M., MD (Univ of Pittsburgh)
The contributors represent the specialties of pediatrics, general medicine, and pediatric pulmonology. Most are from Children's Hospital of Pittsburgh and Univ of Pittsburgh.
Written by Dr. David Orenstein, director of one of the nation’s leading CF centers, this one-of-a-kind guide offers clear explanations and real-world advice on cystic fibrosis and its management. Patients, families, and health care professionals will find practical and reassuring information on day-to-day concerns—school, travel, exercise, nutrition, medication—as well as on physiological effects, treatments, complications, long-term issues, and prospects for a cure. The Third Edition is updated and revised throughout.
This is the second edition of a book aimed at people affected by cystic fibrosis, including patients, family, friends, and health professionals. The purpose is to inform those affected by the disease of the latest developments and help them pursue a normal life. The book fills an important gap for patients and families in providing answers to key questions. Although the book is primarily directed toward patients and their families and friends, medical students and trainees in both pediatrics and adult medicine will find it very useful. Established practitioners who are entering the field of cystic fibrosis as caregivers will also find this to be a very valuable introduction. The book is supplemented by illustrations that are clear and easy to understand. They are appropriate to the subject matter and text. A brief bibliography of classic references is provided. The table of contents is complete and easy to follow. There is an extensive index that is very useful. Each chapter begins with a highlighted summary of information called ""The Basics."" These are the high points of each chapter, and represent the essential information in each section. This carefully constructed book incorporates the expertise of some of the leaders in the field of cystic fibrosis into an easy to read book that clearly and frankly discusses the major issues of living with cystic fibrosis. The book is aimed at patients and their families. However, trainees in internal medicine, family practice, and pediatrics will find this book very useful. It would be a good acquisition for the medical library of any center that deals with cystic fibrosis patients.
Contributing Authors | ||
Introduction | ||
Preface | ||
Acknowledgments | ||
1 | The Basic Defect | 1 |
2 | Making the Diagnosis | 13 |
3 | The Respiratory System | 19 |
4 | The Gastrointestinal Tract | 77 |
5 | Other Systems | 97 |
6 | Nutrition | 107 |
7 | Hospitalization and Other Special Treatments | 131 |
8 | Transplantation | 149 |
9 | Daily Life | 189 |
10 | Exercise | 197 |
11 | Genetics | 213 |
12 | The Family | 227 |
13 | The Teenage Years | 235 |
14 | Cystic Fibrosis and Adulthood | 253 |
15 | Death and Cystic Fibrosis | 273 |
16 | Research and Future Treatments | 281 |
17 | The Cystic Fibrosis Foundation | 293 |
App. A: Glossary of Terms | 303 | |
App. B: Medications | 309 | |
Glossary of Drugs | 334 | |
App. C | Airway Clearance Techniques | 347 |
App. D | Some High Calorie Recipes | 363 |
App. E | The History of Cystic Fibrosis | 373 |
App. F: Bibliography | 375 | |
App. G | Cystic Fibrosis Care Centers in the United States | 377 |
App. H | Cystic Fibrosis Care Centers Worldwide | 419 |
Subject Index | 449 |