Authors: Peter Burke
ISBN-13: 9781843100430, ISBN-10: 1843100436
Format: Paperback
Publisher: Kingsley, Jessica Publishers
Date Published: October 2003
Edition: (Non-applicable)
Examining the overlooked subject of non-disabled siblings in families where there is a disabled child, Brothers and Sisters of Disabled Children details the experiences of these children and explores what it means to them to have a disabled brother or sister. Through family interviews and one-to-one meetings, Peter Burke records siblings' views on issues ranging from the everyday social restrictions on their lives, the discrimination they face at school, through to their concerns about the future. He also considers the difficulties for siblings of finding their own identity in 'disabled' families, competition for parental attention and the phenomenon of 'disability by association' - the tendency for siblings to emulate a disabled brother's or sister's behaviour in an attempt to gain recognition for themselves at home, school and socially.
About the Author:
Peter Burke is Senior Lecturer in Social Work at the University of Hull. He is a former social worker and has published widely in the field of child disability and childcare law
List of Figures | 8 | |
List of Tables | 8 | |
Introduction | 9 | |
Ch. 1 | Theory and Practice | 11 |
Ch. 2 | A Framework for Analysis: The Research Design | 29 |
Ch. 3 | The Impact of Disability on the Family | 41 |
Ch. 4 | Family and Sibling Support | 53 |
Ch. 5 | Children as Young Carers | 67 |
Ch. 6 | Change, Adjustment and Resilience | 77 |
Ch. 7 | The Role of Sibling Support Groups | 91 |
Ch. 8 | Support Services and Being Empowered | 105 |
Ch. 9 | Conclusions: Reflections on Professional Practice for Sibling and Family Support | 119 |
Ch. 10 | Postscript | 129 |
App. 1 | Questionnaire: Support for Brothers and Sisters of Disabled Children | 131 |
App. 2 | Questionnaire: Sibling Group Evaluation | 137 |
References | 141 | |
Subject Index | 151 | |
Author Index | 157 |