2002 Official Parent's SourceBook on Down Syndrome »

A comprehesive manual for anyone interested in self-directed research on down syndrome. Fully referenced with ample Internet listings and glossary.

PART I: THE ESSENTIALS
Chapter 1. The Essentials on Down Syndrome: Guidelines
Overview
What Is Down Syndrome?
The Occurrence of Down Syndrome
Down Syndrome and Maternal Age
Prenatal Screening for Down Syndrome
A Diagnosis of Down Syndrome
Down Syndrome and Associated Medical Disorders
Newborns
Infants and Preschool Children
Early Intervention and Education
Adolescence
Adults with Down Syndrome
Down Syndrome in the Workplace
Future Directions in Down Syndrome Research
Questions and Answers about Down Syndrome
Additional Resources for Down Syndrome
More Guideline Sources
Vocabulary Builder
Chapter 2. Seeking Guidance
Overview
Associations and Down Syndrome
Finding More Associations
Finding Doctors
Finding a Pediatrician
Selecting Your Doctor
Working with Your Child's Doctor
Broader Health-Related Resources
Vocabulary Builder
Chapter 3. Clinical Trials and Down Syndrome
Overview
Recent Trials on Down Syndrome
Benefits and Risks
Keeping Current on Clinical Trials
General References
Vocabulary Builder

PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL
Chapter 4. Studies on Down Syndrome
Overview
The Combined Health Information Database
Federally-Funded Research on Down Syndrome
E-Journals: PubMed Central
The National Library of Medicine: PubMed
Vocabulary Builder
Chapter 5. Patents on Down Syndrome
Overview
Patents on Down Syndrome
Patent Applications on Down Syndrome
KeepingCurrent
Vocabulary Builder
Chapter 6. Books on Down Syndrome
Overview
Book Summaries: Federal Agencies
Book Summaries: Online Booksellers
The National Library of Medicine Book Index
Chapters on Down Syndrome
Directories
General Home References
Vocabulary Builder
Chapter 7. Multimedia on Down Syndrome
Overview
Video Recordings
Bibliography: Multimedia on Down Syndrome
Chapter 8. Periodicals and News on Down Syndrome
Overview
News Services & Press Releases
Newsletters on Down Syndrome
Newsletter Articles
Academic Periodicals covering Down Syndrome
Vocabulary Builder
Chapter 9. Physician Guidelines and Databases
Overview
NIH Guidelines
NIH Databases
Other Commercial Databases
The Genome Project and Down Syndrome
Specialized References
Chapter 10. Dissertations on Down Syndrome
Overview
Dissertations on Down Syndrome
Keeping Current

PART III. APPENDICES
Appendix A. Researching Your Child's Medications
Overview
Your Child's Medications: The Basics
Learning More about Your Child's Medications
Commercial Databases
Contraindications and Interactions (Hidden Dangers)
A Final Warning
General References
Vocabulary Builder
Appendix B. Researching Alternative Medicine
Overview
What Is CAM?
What Are the Domains of Alternative Medicine?
Can Alternatives Affect My Child's Treatment?
Finding CAM References on Down Syndrome
Additional Web Resources
General References
Appendix C. Researching Nutrition
Overview
Food and Nutrition: General Principles
Finding Studies on Down Syndrome
Federal Resources on Nutrition
Additional Web Resources
Vocabulary Builder
Appendix D. Finding Medical Libraries
Overview
Preparation
Finding a Local Medical Library
Medical Libraries Open to the Public
Appendix E. Your Child's Rights and Insurance
Overview
Your Child's Rights as a Patient
Parent Responsibilities
Choosing an Insurance Plan
Medicaid
NORD's Medication Assistance Programs
Additional Resources
Vocabulary Builder

ONLINE GLOSSARIES
Online Dictionary Directories

DOWN SYNDROME GLOSSARY
General Dictionaries and Glossaries

INDEX