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Judith Lynn Nichols
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Women Living With Multiple Sclerosis: Conversations on Living, Laughing and Coping Paperback – January 21, 1999

by Judith Lynn Nichols (Author)
4.2 4.2 out of 5 stars 42 ratings
See all formats and editions
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Walking May Be Difficult, but Together We FlyThis book is an intimate portrait drawn from the e-mail chats of a group of special women. In forming an online support network, they became friends—and then comrades—in the toughest fight of their lives, a fight against the disease they dubbed the MonSter: multiple sclerosis.Many books about this baffling disease of the central nervous system provide only medical information. Women Living with Multiple Sclerosis goes much further. Members of the all-woman group share intimate, emotional accounts of their experiences with MS. Some stories are painful, some are funny, and often they are both. The range of deeply personal concerns includes
  • family reactions to a diagnosis of MS
  • workplace issues and relationships
  • sexuality and spirituality
  • depression and physical pain
  • loss of bladder and bowel control
  • assistive devices and helpful tools

All topics are discussed freely and frankly, in a way only the closest of friends do. Invaluable nuggets of medical information and practical advice from all of the members are woven seamlessly into the text, accompanied by Judith Lynn Nichols’ knowledgeable, compassionate, even humorous commentary.

For families and friends of those with MS, Women Living with Multiple Sclerosis is an intimate look into what it’s like to have the disease. MS sufferers reading this book will truly feel they are not alone. As one member of the group writes, “Walking may be difficult, but together we fly.” Read this book, and you will feel among friends, a member of the group—and that someone finally understands.

Royalties from the sale of this book will be donated to local chapters of the National Multiple Sclerosis Society

Previous page
  1. Print length
    256 pages
  2. Language
    English
  3. Publisher
    Hunter House
  4. Publication date
    January 21, 1999
  5. Dimensions
    5.8 x 0.72 x 8.3 inches
  6. ISBN-10
    0897932188
  7. ISBN-13
    978-0897932189
  8. See all details
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Editorial Reviews

From Library Journal

The author, herself a victim of multiple sclerosis (MS) for over 30 years, uses a compilation of E-mail chats to relate 23 women's experiences with MS. The use of various electronic media has provided these women, who sometimes suffer isolation as a result of their disability, "a way to `leave' [their] everyday surroundings and seek out a safe place where [they] can talk about [their] ups and downs with others who are going through the same experiences." The author states that very little medical information is given and that "all the experiences are shared in a conversational context, and are not intended to be medical advice." Although trite at times, this approach to a discussion of life with MS is more open and appealing and less frightening than Ellen MacFarlane's Legwork: An Inspiring Journey Through Chronic Illness (LJ 9/15/94). Recommended for all general collections and caregivers and physicians involved with MS patients.AMary J. Nickum, Bozeman, MT
Copyright 1999 Reed Business Information, Inc.

From Kirkus Reviews

Twenty-three women with multiple sclerosis share their e-mail discussions; the result is a ready-made support group for others with the disease that offers plenty of practical tips for day-to-day coping. Nichols (a former reporter and freelance writer) has had MS for over 30 years; she introduces the other women in the group by age and circumstances (medical and otherwise): the range is wide enough so that readers will easily find experiences here that speak to their own conditions. Chapters are loosely organized around guiding themes, but among the big questions covered here are mobility, work, family issues, sex, pain, depression, bowel and bladder control, and spirituality. Medical information is reliable as far as it goes, but much more valuable are pointers on getting good medical care, coupled with advice on all the subjects that either won't come up or wont be adequately covered in a physician's office. Nichols and company are particularly helpful in dealing with the uncertainty surrounding diagnosis (MS is notoriously hard to pin down) and the resulting emotional roller coaster. At the time of Nichols's own diagnosis, her priest visited her in the hospital to tell her he was sorry she had MS, but ``it's your own fault for assuming that you know more than God about what's best for you''. Nichols and her friends have stood up under that kind of assault, as well as the trials MS has hurled their way. Their strength and their practical outlook can help others cope. -- Copyright ©1999, Kirkus Associates, LP. All rights reserved.

Product details

  • Publisher ‏ : ‎ Hunter House; 1st edition (January 21, 1999)
  • Language ‏ : ‎ English
  • Paperback ‏ : ‎ 256 pages
  • ISBN-10 ‏ : ‎ 0897932188
  • ISBN-13 ‏ : ‎ 978-0897932189
  • Item Weight ‏ : ‎ 14.2 ounces
  • Dimensions ‏ : ‎ 5.8 x 0.72 x 8.3 inches
  • Customer Reviews:
    4.2 4.2 out of 5 stars 42 ratings

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Judith Lynn Nichols

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Customer reviews

4.2 out of 5 stars
4.2 out of 5
42 global ratings

Top reviews from the United States

Lucinda A. Montuori
5.0 out of 5 stars Welcome to my life!!!
Reviewed in the United States on October 29, 2003
Verified Purchase
Having lived with M.S. for over 20 years, I've read everything I could get my hands on. Nothing I read reached me like Women Living with Multiple Sclerosis. I loved it. Ms. Nichols and her "froup" members made me feel so welcome, so understood, so OK about myself. The book was so unabashedly frank, so helpful, and so very on target that I bought copies for two women friends with M.S., and gave my book to my mother and several other friends to read, just so they could see what it's like being ME, in layperson's terms, with no clinical mumbojumbo. This book is fabulous! Every woman with a diagnosis of M.S. - and all those who love her - should read this book. We really are all in this together, and there is so much for us to learn and share.
6 people found this helpful
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Terry
5.0 out of 5 stars Listening in
Reviewed in the United States on December 10, 2011
Verified Purchase
This is an easy to follow, conversational style book that contains many issues as they randomly arose during message board chats. It's an interesting format for a book. I am only half-way through it, but so far I am finding it both enjoyable and affirming as a person with multiple sclerosis.
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BBennett
5.0 out of 5 stars A wonderful book....
Reviewed in the United States on October 9, 2012
Verified Purchase
As someone who is newly diagnosed with MS, I can only say that this book is a great comfort to me. I encourage anyone who has MS or loves someone with MS to read this. Thank you to the authors.
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Silver Sister
4.0 out of 5 stars Purchased as a Gift.
Reviewed in the United States on January 9, 2013
Verified Purchase
This book was purchased at the request of the receptionist at my Doctor"s office for a young mother who works there. I was told that the book was a good resource of help to her. Thank you. Yes, I would recommend this book to others.
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Starfishin
1.0 out of 5 stars A Book for Almost No One
Reviewed in the United States on December 8, 2004
As promised, I've been thinking it over for the last four years, and I still think this is a very narrow, out-of-date book that is relevent for very few women. If you're newly dx'd, forget it. It will depress you, and possibly scare you -- not only because so many of these women are struggling with serious disabilities, but because they have very narrow, tiny lives. No matter how MS treats you, life doesn't have to be like this! I'm glad these women found each other, but it's kind of like hanging out with Donna Reed if she had a serious disability. There really is more to life than this -- and there certainly is more to life with MS!
One person found this helpful
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Sandie Nelson
5.0 out of 5 stars Great book for anyone with MS
Reviewed in the United States on July 26, 2014
Verified Purchase
Great book for anyone with MS. Answers a lot of questions I had. Once I got going reading the book, I could'nt put it down.
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Sherri
5.0 out of 5 stars Five Stars
Reviewed in the United States on November 13, 2015
Verified Purchase
A good read for those living with MS, even for caregivers or others affected by this awful disease.
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Zsuzska
5.0 out of 5 stars Five Stars
Reviewed in the United States on December 2, 2014
Verified Purchase
Great!!!
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Top reviews from other countries

Lynne
5.0 out of 5 stars Five Stars
Reviewed in the United Kingdom on January 30, 2015
Verified Purchase
Excellent
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