Authors: Mark Edwin Kunik M. D., M. P. H., Patricia B. Smith, Mary M. Kenan Psy.D., Leeza Gibbons
ISBN-13: 9780764538995, ISBN-10: 0764538993
Format: Paperback
Publisher: Wiley, John & Sons, Incorporated
Date Published: October 2003
Edition: (Non-applicable)
Patricia B. Smith is an award-winning medical writer.
Mary Mitchell Kenan, PsyD, is the Director of Education for Baylor College of Medicine’s Alzheimer’s Disease Center.
Mark Edwin Kunik, MD, MPH, is a geriatric psychiatrist at the Houston Veterans Affairs Medical Center (VAMC) and Baylor College of Medicine.
An estimated 4 million people are living with Alzheimer’s Disease (AD) in America today, with approximately 370,000 new cases diagnosed every year. AD patients live anywhere from 5 to 20 years after their diagnosis; and their inability to care for themselves grows more dramatic as the disease progresses, creating profound implications for their families and healthcare providers. Its impact on families during the caregiving years is overwhelming.
If you have a family member or close friend who’s suffering from Alzheimer’s Disease and you’re looking for current, useful information, then Alzheimer’s For Dummies is for you. This reference guide also is helpful if you
Need to know more about its diagnosis and treatment
Want to take care of yourself while taking care of your loved one
Are not the primary caregiver but want to know how to help
Want to know how Alzheimer’s Disease is going to affect you and your loved one
Alzheimer’s For Dummies takes a realistic look at Alzheimer’s Disease, what it is and what it isn’t. It offers pertinent, easy-to-understand advice for dealing with the myriad concerns and responsibilities that a primary caregiver must assume when managing an Alzheimer’s patient. Here’s a sampling of the information you’ll find in this valuable guide:
Maneuvering through medical, legal, and financial tangles
Distinguishing AD from other brain diseases and medical conditions
Handling the fears that may accompany the diagnosis
Evaluating current drug therapies; watching out for scams and quack treatments
Finding the bestdoctors; dealing with attorneys and CPAs
Looking at Medicare regulations
Evaluating the cost of care
The current state of research, diagnosis, and treatment
Television personality Leeza Gibbons, whose mother was stricken with AD, writes in the foreword of this book, “There is no upside to keeping your head in the sand. This book is a crucial step in your new fight. Arm yourself with the knowledge waiting for you in these pages. It will help you find answers and resources as you adjust to your new reality.”
This is a powerful tool for those who battle this disease."
-- Leeza Gibbons
Foreword | xix | |
Introduction | 1 | |
About This Book | 2 | |
Conventions Used in This Book | 2 | |
Foolish Assumptions | 2 | |
How This Book Is Organized | 3 | |
Icons Used in This Book | 4 | |
Where to Go from Here | 5 | |
Part I | Could It Be Alzheimer's Disease? | 7 |
Chapter 1 | The Facts on Alzheimer's Disease | 9 |
Defining Alzheimer's Disease | 10 | |
Busting the Myths About AD | 11 | |
Looking at Symptoms and Causes | 11 | |
Discovering Treatment Options | 12 | |
Tackling Financial and Legal Issues | 12 | |
Making Medical Decisions and Providing Care | 12 | |
Finding Respite | 13 | |
What Should I Do Now? | 13 | |
Chapter 2 | Symptoms, Causes, and Risk Factors | 15 |
Getting an Idea of What to Look For | 16 | |
Red Flag or Red Herring? | 23 | |
Looking at Some Theories on the Causes of AD | 24 | |
Examining Risk Factors for Developing Alzheimer's Disease | 28 | |
Chapter 3 | Getting a Diagnosis | 31 |
How Doctors Diagnose Alzheimer's Disease | 32 | |
Finding Someone to Do an Evaluation | 32 | |
Before You Seek a Diagnosis: Collecting Medical History | 37 | |
Understanding AD Diagnostic Tests | 40 | |
What to Do When the Diagnosis Is Made | 50 | |
Chapter 4 | Distinguishing Alzheimer's Disease from Other Medical Conditions | 53 |
Making Sure that You Have a Reliable Diagnosis | 53 | |
It May Be Dementia, but Is It Alzheimer's? | 55 | |
Ruling Out the Usual (and Unusual) Suspects | 56 | |
Chapter 5 | Identifying Your Fears: For the Patient and the Caregiver | 69 |
Concerns for the Alzheimer's Patient | 70 | |
Concerns for the Caregiver | 80 | |
Part II | Helping a Loved One Manage the Illness | 85 |
Chapter 6 | Understanding the Stages of Alzheimer's Disease | 87 |
How to Use the Classifications | 88 | |
Three Stages | 88 | |
Four Stages | 90 | |
Five, Six, and Seven Stages | 93 | |
The Current Thinking: Assessing Alzheimer's Stages Via Cognitive and Functional Impairment | 94 | |
Chapter 7 | Evaluating Drug Therapies | 99 |
A Little Background on Brain Chemistry | 99 | |
Reviewing Current FDA-Approved Drugs | 102 | |
Considering Other Types of Drugs | 107 | |
Chapter 8 | Avoiding Snake Oil and Other Ineffective Treatments | 111 |
Treatments and Tests That Aren't Worth Your Time or Money | 112 | |
Sniffing Out Scams: Five Warning Signs to Look For | 118 | |
Chapter 9 | Taking Part in Clinical Trials | 121 |
What Is a Clinical Trial? | 122 | |
Weighing the Benefits and the Risks When Participating in a Clinical Trial | 123 | |
Finding Clinical Trials | 126 | |
Enrolling in a Clinical Trial | 127 | |
What Happens During a Trial | 129 | |
Current Alzheimer's Trials | 132 | |
Chapter 10 | Promising New Drugs and Diagnostic Tools | 137 |
The Current State of Affairs | 138 | |
Promising (and Not-So-Promising) New Drugs | 138 | |
An Ounce of Prevention: The Hunt for an Alzheimer's Vaccine | 142 | |
Drugs and Therapies Already Approved for Other Uses | 143 | |
Testing Positive: Looking for the Definitive Diagnosis | 150 | |
Chapter 11 | Finding Alternative Therapies | 157 |
Calming Alzheimer's Disease Patients | 158 | |
Having Some Fun and Easing Isolation | 162 | |
Part III | Providing Care for the AD Patient | 165 |
Chapter 12 | Making Medical Decisions | 167 |
Finding the Right Healthcare Provider | 168 | |
Building a Team | 169 | |
Keeping Good Records | 170 | |
Using Alternative Therapies | 171 | |
Evaluating Clinical Trials | 172 | |
Understanding the Importance of Cholinesterase Inhibitors | 173 | |
Deciding on End-of-Life Care Options | 174 | |
Considering Brain Donation | 177 | |
Chapter 13 | Understanding Legal Issues for Alzheimer's Patients | 181 |
Getting Started | 182 | |
Evaluating Your Legal Options | 183 | |
Durable Power of Attorney | 184 | |
Guardianships or Conservatorships | 191 | |
Living Trusts | 195 | |
Making Choices for Medical Care | 197 | |
Drawing Up a Will | 199 | |
Chapter 14 | Working through Financial Issues for Alzheimer's Patients | 203 |
Reviewing Financial Needs and Resources | 204 | |
Taking Over the Financial Reins | 207 | |
Understanding Changes in Tax Status | 209 | |
Deciding Whether You Need a Financial Advisor | 210 | |
Quitting Work | 214 | |
Evaluating Insurance Coverage | 217 | |
Running Out of Resources: What Next? | 223 | |
Chapter 15 | Evaluating Care Options | 227 |
Identifying Your Options | 228 | |
Respite Care Options | 231 | |
Making the Transition to Residential Care | 242 | |
Residential Care Options | 244 | |
Chapter 16 | Caring for the Alzheimer's Patient | 251 |
Making a Care Plan | 252 | |
Defining Practice Parameters and Standards of Care | 253 | |
Standards of Care and Practice Parameters for AD Patients | 256 | |
Caring for AD Patients | 257 | |
Planning Activities and Exercise | 273 | |
Preparing for Bed | 276 | |
Making the House Safer | 277 | |
Dealing with the Patient's Emotions | 280 | |
Part IV | Respite Care for the Caregiver | 283 |
Chapter 17 | Coping While Caregiving | 285 |
Caregiving Is Hard Work | 286 | |
Caring for an AD Patient Affects You Emotionally | 287 | |
Caregiving and Your Physical Health | 292 | |
Using Humor to Cope | 294 | |
Knowing When to Ask for Help | 295 | |
Chapter 18 | Finding Support | 297 |
Finding Out What's Available | 298 | |
Looking into Support Groups | 302 | |
Finding a Counselor | 304 | |
Chapter 19 | Taking Care of the Caregiver | 305 |
Giving Yourself a Break | 306 | |
Being Good to Yourself | 308 | |
Avoiding Isolation | 311 | |
Chapter 20 | Handling Work and Family as Caregiver | 315 |
Understanding the Importance of Routines | 316 | |
Juggling a Job and Caregiving Responsibilities | 316 | |
Balancing Family and Caregiving | 321 | |
Making Time for Your Family | 324 | |
Chapter 21 | Helping When You're Not the Primary Caregiver | 325 |
Understanding How Family Dynamics Affect Caregiving Decisions | 326 | |
Learning How to Help | 329 | |
Dealing with Out-of-Towner's Guilt | 332 | |
Part V | The Part of Tens | 333 |
Chapter 22 | Ten Tips for the Alzheimer's Caregiver | 335 |
Good: Ask for Help | 335 | |
Bad: "I'd Rather Do It Myself" | 336 | |
Good: Modesty Garments | 336 | |
Bad: Birthday Suit | 336 | |
Good: Ask for Volunteer Assistance | 337 | |
Bad: "I Don't Need Help from Anyone" | 337 | |
Good: Cook Once, Eat Twice | 337 | |
Bad: Fast Food Bingo | 337 | |
Good: Remember to Laugh Daily | 338 | |
Bad: Wallow in Your Misery | 338 | |
Chapter 23 | More Than Ten Internet Resources for Alzheimer's Caregivers | 339 |
ADEAR (Alzheimer's Disease Education and Referral) | 340 | |
Administration on Aging | 340 | |
AgeNet Eldercare Network | 341 | |
Alzheimer's Association | 341 | |
Alzheimer's Caregiver Support Online | 342 | |
The Alzheimer's Foundation of America | 342 | |
benefitscheckup.org | 342 | |
Caregiver.com | 342 | |
CareSsentials | 343 | |
Family Caregiver Alliance | 343 | |
The Leeza Gibbons Memory Foundation | 343 | |
Long-Distance Caregiving | 343 | |
National Family Caregivers Association | 344 | |
Needymeds.com | 344 | |
Medlineplus.gov | 344 | |
Index | 345 |