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Alzheimer's For Dummies »

Book cover image of Alzheimer's For Dummies by Mark Edwin Kunik M. D., M. P. H.

Authors: Mark Edwin Kunik M. D., M. P. H., Patricia B. Smith, Mary M. Kenan Psy.D., Leeza Gibbons
ISBN-13: 9780764538995, ISBN-10: 0764538993
Format: Paperback
Publisher: Wiley, John & Sons, Incorporated
Date Published: October 2003
Edition: (Non-applicable)

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Author Biography: Mark Edwin Kunik M. D., M. P. H.

Patricia B. Smith is an award-winning medical writer.

Mary Mitchell Kenan, PsyD, is the Director of Education for Baylor College of Medicine’s Alzheimer’s Disease Center.

Mark Edwin Kunik, MD, MPH, is a geriatric psychiatrist at the Houston Veterans Affairs Medical Center (VAMC) and Baylor College of Medicine.

Book Synopsis

An estimated 4 million people are living with Alzheimer’s Disease (AD) in America today, with approximately 370,000 new cases diagnosed every year. AD patients live anywhere from 5 to 20 years after their diagnosis; and their inability to care for themselves grows more dramatic as the disease progresses, creating profound implications for their families and healthcare providers. Its impact on families during the caregiving years is overwhelming.

If you have a family member or close friend who’s suffering from Alzheimer’s Disease and you’re looking for current, useful information, then Alzheimer’s For Dummies is for you. This reference guide also is helpful if you

Need to know more about its diagnosis and treatment
Want to take care of yourself while taking care of your loved one
Are not the primary caregiver but want to know how to help
Want to know how Alzheimer’s Disease is going to affect you and your loved one

Alzheimer’s For Dummies takes a realistic look at Alzheimer’s Disease, what it is and what it isn’t. It offers pertinent, easy-to-understand advice for dealing with the myriad concerns and responsibilities that a primary caregiver must assume when managing an Alzheimer’s patient. Here’s a sampling of the information you’ll find in this valuable guide:

Maneuvering through medical, legal, and financial tangles
Distinguishing AD from other brain diseases and medical conditions
Handling the fears that may accompany the diagnosis
Evaluating current drug therapies; watching out for scams and quack treatments
Finding the bestdoctors; dealing with attorneys and CPAs
Looking at Medicare regulations
Evaluating the cost of care
The current state of research, diagnosis, and treatment

Television personality Leeza Gibbons, whose mother was stricken with AD, writes in the foreword of this book, “There is no upside to keeping your head in the sand. This book is a crucial step in your new fight. Arm yourself with the knowledge waiting for you in these pages. It will help you find answers and resources as you adjust to your new reality.”

This is a powerful tool for those who battle this disease."
-- Leeza Gibbons

Table of Contents

Forewordxix
Introduction1
About This Book2
Conventions Used in This Book2
Foolish Assumptions2
How This Book Is Organized3
Icons Used in This Book4
Where to Go from Here5
Part ICould It Be Alzheimer's Disease?7
Chapter 1The Facts on Alzheimer's Disease9
Defining Alzheimer's Disease10
Busting the Myths About AD11
Looking at Symptoms and Causes11
Discovering Treatment Options12
Tackling Financial and Legal Issues12
Making Medical Decisions and Providing Care12
Finding Respite13
What Should I Do Now?13
Chapter 2Symptoms, Causes, and Risk Factors15
Getting an Idea of What to Look For16
Red Flag or Red Herring?23
Looking at Some Theories on the Causes of AD24
Examining Risk Factors for Developing Alzheimer's Disease28
Chapter 3Getting a Diagnosis31
How Doctors Diagnose Alzheimer's Disease32
Finding Someone to Do an Evaluation32
Before You Seek a Diagnosis: Collecting Medical History37
Understanding AD Diagnostic Tests40
What to Do When the Diagnosis Is Made50
Chapter 4Distinguishing Alzheimer's Disease from Other Medical Conditions53
Making Sure that You Have a Reliable Diagnosis53
It May Be Dementia, but Is It Alzheimer's?55
Ruling Out the Usual (and Unusual) Suspects56
Chapter 5Identifying Your Fears: For the Patient and the Caregiver69
Concerns for the Alzheimer's Patient70
Concerns for the Caregiver80
Part IIHelping a Loved One Manage the Illness85
Chapter 6Understanding the Stages of Alzheimer's Disease87
How to Use the Classifications88
Three Stages88
Four Stages90
Five, Six, and Seven Stages93
The Current Thinking: Assessing Alzheimer's Stages Via Cognitive and Functional Impairment94
Chapter 7Evaluating Drug Therapies99
A Little Background on Brain Chemistry99
Reviewing Current FDA-Approved Drugs102
Considering Other Types of Drugs107
Chapter 8Avoiding Snake Oil and Other Ineffective Treatments111
Treatments and Tests That Aren't Worth Your Time or Money112
Sniffing Out Scams: Five Warning Signs to Look For118
Chapter 9Taking Part in Clinical Trials121
What Is a Clinical Trial?122
Weighing the Benefits and the Risks When Participating in a Clinical Trial123
Finding Clinical Trials126
Enrolling in a Clinical Trial127
What Happens During a Trial129
Current Alzheimer's Trials132
Chapter 10Promising New Drugs and Diagnostic Tools137
The Current State of Affairs138
Promising (and Not-So-Promising) New Drugs138
An Ounce of Prevention: The Hunt for an Alzheimer's Vaccine142
Drugs and Therapies Already Approved for Other Uses143
Testing Positive: Looking for the Definitive Diagnosis150
Chapter 11Finding Alternative Therapies157
Calming Alzheimer's Disease Patients158
Having Some Fun and Easing Isolation162
Part IIIProviding Care for the AD Patient165
Chapter 12Making Medical Decisions167
Finding the Right Healthcare Provider168
Building a Team169
Keeping Good Records170
Using Alternative Therapies171
Evaluating Clinical Trials172
Understanding the Importance of Cholinesterase Inhibitors173
Deciding on End-of-Life Care Options174
Considering Brain Donation177
Chapter 13Understanding Legal Issues for Alzheimer's Patients181
Getting Started182
Evaluating Your Legal Options183
Durable Power of Attorney184
Guardianships or Conservatorships191
Living Trusts195
Making Choices for Medical Care197
Drawing Up a Will199
Chapter 14Working through Financial Issues for Alzheimer's Patients203
Reviewing Financial Needs and Resources204
Taking Over the Financial Reins207
Understanding Changes in Tax Status209
Deciding Whether You Need a Financial Advisor210
Quitting Work214
Evaluating Insurance Coverage217
Running Out of Resources: What Next?223
Chapter 15Evaluating Care Options227
Identifying Your Options228
Respite Care Options231
Making the Transition to Residential Care242
Residential Care Options244
Chapter 16Caring for the Alzheimer's Patient251
Making a Care Plan252
Defining Practice Parameters and Standards of Care253
Standards of Care and Practice Parameters for AD Patients256
Caring for AD Patients257
Planning Activities and Exercise273
Preparing for Bed276
Making the House Safer277
Dealing with the Patient's Emotions280
Part IVRespite Care for the Caregiver283
Chapter 17Coping While Caregiving285
Caregiving Is Hard Work286
Caring for an AD Patient Affects You Emotionally287
Caregiving and Your Physical Health292
Using Humor to Cope294
Knowing When to Ask for Help295
Chapter 18Finding Support297
Finding Out What's Available298
Looking into Support Groups302
Finding a Counselor304
Chapter 19Taking Care of the Caregiver305
Giving Yourself a Break306
Being Good to Yourself308
Avoiding Isolation311
Chapter 20Handling Work and Family as Caregiver315
Understanding the Importance of Routines316
Juggling a Job and Caregiving Responsibilities316
Balancing Family and Caregiving321
Making Time for Your Family324
Chapter 21Helping When You're Not the Primary Caregiver325
Understanding How Family Dynamics Affect Caregiving Decisions326
Learning How to Help329
Dealing with Out-of-Towner's Guilt332
Part VThe Part of Tens333
Chapter 22Ten Tips for the Alzheimer's Caregiver335
Good: Ask for Help335
Bad: "I'd Rather Do It Myself"336
Good: Modesty Garments336
Bad: Birthday Suit336
Good: Ask for Volunteer Assistance337
Bad: "I Don't Need Help from Anyone"337
Good: Cook Once, Eat Twice337
Bad: Fast Food Bingo337
Good: Remember to Laugh Daily338
Bad: Wallow in Your Misery338
Chapter 23More Than Ten Internet Resources for Alzheimer's Caregivers339
ADEAR (Alzheimer's Disease Education and Referral)340
Administration on Aging340
AgeNet Eldercare Network341
Alzheimer's Association341
Alzheimer's Caregiver Support Online342
The Alzheimer's Foundation of America342
benefitscheckup.org342
Caregiver.com342
CareSsentials343
Family Caregiver Alliance343
The Leeza Gibbons Memory Foundation343
Long-Distance Caregiving343
National Family Caregivers Association344
Needymeds.com344
Medlineplus.gov344
Index345

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